Ethics of Research Involving Minors



Dirk Lanzerath, Marcella Rietschel (eds.)

Ethics of Research Involving Minors
A European Perspective


Band 29 der Reihe Medizin-Ethik/Medical Ethics. Schriftenreihe des Arbeitskreis medizinischer Ethik-Kommissionen in der Bundesrepublik Deutschland e.V.

LIT-Verlag, 2018

128 pages, ISBN 978-3-643-90975-6

Research involving minors is an area of controversy within medical ethics and medical law. Minors represent a vulnerable group, for whom particular protective measures are required and who should be excluded from research that does not offer the prospect of direct benefit. However, the exclusion of minors from research into disorders of relevance to their age group precludes the potential for beneficial medical advances. Furthermore, effective prevention strategies for common medical conditions with an origin in childhood and adolescence, such as mental disorders, require the delineation of those who are at increased risk. This volume considers the ethical challenges of research with minors for the researchers, but also for the involved research ethics committees. In particular, it reflects how minors can be more involved in the decision-making-processes and reports about the experiences in conducting the European multicentric research project IMAGEMEND.

©2019 Arbeitskreis Medizinischer Ethikkommissionen in der Bundesrepublik Deutschland e.V.