Ethics of Research Involv­ing Minors

Dirk Lanz­erath, Mar­cella Rietschel (eds.)

Ethics of Research Involv­ing Minors
A Euro­pean Perspective

Band 29 der Reihe Medizin-​Ethik/​Medical Ethics. Schriften­reihe des Arbeit­skreis medi­zinis­cher Ethik-​Kommissionen in der Bun­desre­pub­lik Deutsch­land e.V.

LIT-​Verlag, 2018

128 pages, ISBN 9783-​64390975-​6


Research involv­ing minors is an area of con­tro­versy within med­ical ethics and med­ical law. Minors rep­re­sent a vul­ner­a­ble group, for whom par­tic­u­lar pro­tec­tive mea­sures are required and who should be excluded from research that does not offer the prospect of direct ben­e­fit. How­ever, the exclu­sion of minors from research into dis­or­ders of rel­e­vance to their age group pre­cludes the poten­tial for ben­e­fi­cial med­ical advances. Fur­ther­more, effec­tive pre­ven­tion strate­gies for com­mon med­ical con­di­tions with an ori­gin in child­hood and ado­les­cence, such as men­tal dis­or­ders, require the delin­eation of those who are at increased risk. This vol­ume con­sid­ers the eth­i­cal chal­lenges of research with minors for the researchers, but also for the involved research ethics com­mit­tees. In par­tic­u­lar, it reflects how minors can be more involved in the decision-​making-​processes and reports about the expe­ri­ences in con­duct­ing the Euro­pean mul­ti­cen­tric research project IMAGEMEND.

©2020 Arbeit­skreis Medi­zinis­cher Ethikkom­mis­sio­nen in der Bun­desre­pub­lik Deutsch­land e.V.